25 days old!
Ryan had a really rough day yesterday. He had an episode of de-satting and dropped heart rate at least every 30 minutes. Many of the episodes were significant enough for the nurse and RT to have to bag him. During one of the episodes we saw his oxygen drop into the teens and his heart rate into the low 80s. He turned blue. I overheard them discussing if they needed to do chest compressions. This stuff absolutely terrifies us. We know (we've seen) the consequences of lack of oxygen to the brain. We don't know if these episodes are frequent enough or long enough in duration to cause brain damage, but it terrifies us...just the possibility. It's also very discouraging because every time we talked or touched Ryan yesterday he had an episode. We know it wasn't just us. He did it with ANY stimulation at all, but the nurses made comments like "he knew you were coming", "he was satting in the 90s until you guys rang the doorbell", "he did fine after you left". I'm sure their comments were meant as lighthearted joking, but when you're already concerned and discouraged it only makes you feel worse. It's already so hard to feel like a mother and a father, and when your presence seems to make things worse, well...I don't even know how to describe it. Other than that, here are the facts about yesterday...
He went back under the bili light and on top of the bili blanket.
He had to receive a blood transfusion, 11ml.
They turned his pressure up on the ventilator from 17 to 19.
They had to change his touch times to every 6 hours from every 3 hours simply because he is not handling any stimulation well.
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